All stories
Dusty's story
At 41, Dusty received a diagnosis that changed her life. What was first thought to be advanced pancreatic cancer turned out to be GEP-NET, a subtype of neuroendocrine tumors. This is her story of navigating uncertainty, finding hope, and living with the disease.
Neuroendocrine tumors
Kath's story
“I knew there was something wrong and it had been going on for years. But instead of looking at the bigger picture, every symptom was treated as a single event”, she recalls. Initially she was diagnosed with Irritable Bowel Syndrome (IBS), later she had a surgery to remove abdominal adhesions and was put on wheat free diet, but symptoms continued to worsen.
Neuroendocrine tumors
Simona's story
An ultrasound scan for persistent hiccups changed Simona’s life. After two years of tests, she was diagnosed with neuroendocrine tumors – a disease she had never heard of.
Neuroendocrine tumors
Josh's story
Josh was a fit 46-year-old living happily in California with his wife and newborn son. An annual check-up led Josh to wonder if he would live to see his son’s first birthday.
Neuroendocrine tumors